Stacy's Vision

Today I came across an article that let me hear Braylon's voice for the first time... not literally, but into his world for sure. The article is about an adult woman's journey back to vision after her stroke. Just like Braylon, her visual field was cut in half on both eyes. She too could not see anything to the left. I can still only imagine how that much of a vision loss would affect my daily life, but she allowed me to understand a little better. Read the article as if Braylon was speaking to you. Try to understand how difficult that would make EVERYTHING. Now praise God that B still runs around with a BIG smile on his face! Soon Braylon will be receiving a visual aid teacher and I'm sure with that will come some great stories to report to you. Thanks for your continued prayers!

Stacy's Vision

msnbc.com: Paralyzed soccer player walks again

msnbc.com: Paralyzed soccer player walks again

I saw this on the today show this morning and it reminded me of Braylon. Even know the cause is different, their fight is the same.... and I noticed she wears the same type of AFO (ankle brace) as Braylon. Just a reminder of how good God is!

Braylon's EEG

About two weeks ago I mentioned to Braylon's physical therapist that B's eyes were twitching. She told me to report it to the neuro. When I did call the neuro, he scheduled and emergency EEG for Braylon. An EEG is a test conducted in order to detect seizures. During the test Braylon had to be sleep deprived, which was very difficult on all of us. The test sets up a series of events that would typically cause a seizure in a person prone to seizures... for example, a strobe light flashing in front of his eyes. Well the good news is, Braylon never had a seizure during the test. But the test did show abnormal brain waves on the right side of his brain. The neuro prescribed seizure medication for Braylon as a preventative measure, but neither my husband nor I feel comfortable giving it to Braylon.

Braylon has never had a seizure to our knowledge. We know that the chances of him having one are higher than a normal because of the stroke, but he still hasn't had one. After researching the meds and there side effects (one being causing seizures), we feel that at this time we shouldn't give the meds to Braylon. I know some people may think we're crazy for not listening to the doctor, but my P.O.V may be different than theirs. In Braylon's case once he started the meds he would have to stay on them for the rest of his life. With a normal brain meds can control seizures and eventually be weaned off. With a brain of a stroke victim, getting off medicine could cause an even worse debilitating seizure. Plus, Braylon isn't even two yet. What would be the long term effects on the rest of his body (i.e. liver, spleen, blood, heart) if he was to be on this medication for 20+ years.?? Sometimes I think medicine can do more harm than good. So for now we are going to continue with our prayers and expectations of healing. We're believing in God and preparing our fields for good. One thing I've learned is our decisions may not always be easy, but when we have faith in God we understand why we have to make them.